Tuesday, May 31, 2016

I HAVE HIT A HIGH NOTE


     I Graduated on May 19 with an Associate of Arts and I couldn't be more pleased. This comes on the heal of my next check up to see where my "C" stands. I see the Oncologist  on June 6th and to tell you the truth I am nervous for the first time in 5 months. Well whatever it shows, we can deal with this we deal with everything else. I will start blogging again and I will add so many stories of people who are survivors, people who just found out; and their loved ones views. So follow me and we will surely beat this disgusting disease together. One last sad note tonight, One young lady who stood behind me and loved me dearly has passed on and I feel that my court is a little smaller, but still a strong one. I love you Maureen Cotter "Mo" 


Wednesday, July 1, 2015

The Bad and The Good

GIVE UP ON THING, TO GAIN ANOTHER




I chose this picture of Las Vegas because it represents Summers in July before I found out and really lived without the knowledge of a fight I knew nothing about. 


It seems that I have almost forgotten about my posting on the BLOG because I didn't feel I was reaching enough people. But the only person I should be concerned with is me. Since my diagnosis I have gone through many ups and downs, I have had many many good friends stand by me and other things that have left me almost forgetting about it at times. I found out today that because I have this cancer they cannot do a certain procedure with my spine that would allow my hands and wrists to feel better and be more agile to do work that I have been so limited to in the past. This is probably not the most positive posts that I have put on here but it helps me to cope with the situation I am not in Denial and it gives me strength and hope to get it all out. This month of July is going to be filled with some really challenging situations but I will see them through, and I will triumph like I always do. I just wish the future came in a letter or an email saying this is how you will triumph, so I know that I am going at the right pace. I have totally put off  my procedure until I get my life situated to where I have a place to live and my school, last term is in progress. I am looking foward to happier posts and also  future updates. - Mark.

Friday, June 12, 2015

I have to have full faith in my Urologist and Oncologist. https://youtube/akStLu4ToNs Dr. Charles Modlin has been my Doctor through this and I trust him completely. As I have known about this in my own body I have fought with the different options that were given to me. Really there were only two I considered. One was the Prostatectomy or the Brachytherapy.  Although I thought about the Total removal of this area of my body that is holding the disease my doctors assured me that in all cases, there is a 85% rate of cure.

I have chosen:

e







http://www.prostate-cancer.com/ . I chose this because it has the most minimal affects on my body and my time in healing. This also means that if I have remission, yet it appears again, then I can never have the Prostatectomy. I can live with that. I have been around 54 years and have had a wonderful life, I have been so empowered by choosing   my way of treatment, and had the fortune of having so many people who love and care about me. I have to wait until August or September to do this because I will be in the middle of a move in July. I am going into this without a Heavy Heart and I know that I will come out successful. There is no other choice. I have a feeling I am here for a reason. I have lived through diseases, being hit by a school bus, and having my a big part of my family turning away from me Because of my Sexual Preference. I am a Survivor. I love my family and the ones who are there.

 
A special thank you goes out to Joe. Some of you know who he is and he has been a strength for me. Also Jerry, whom I would have never had my prostate checked and probably would have died from it. I love you both so much. You are men of distinction and Bravery. 

Tuesday, April 28, 2015

Depression and Cancer


DEPRESSION AND CANCER


No matter where you are in your life when you are told that you have this disease, it is a devastating blow to everything you are and know. I am one who suffers from Clinical Depression and Bi Polar as well. I am at the other end of these for I don't let them rule my life. There are times I am affected by them and I just want to stay in bed and eat everything insight. Now that I have been diagnosed with Prostate Cancer I am like a light switch. Sometimes I am all over the board with my feelings and need to appease myself but there are days and if they are bright enough, I don't even think about it. I am currently waiting for a Doctors Genetic Testing before I make my decision as to what treatment to take. I am honestly positive and beyond hopeful that this will play a very small part of my life. I may have to be a Cancer Survivor, but it will never survive me.



Depression and cancer

It’s normal to grieve over the changes that cancer brings to a person’s life. The future, which may have seemed so sure before, now becomes uncertain. Some dreams and plans may be lost forever. But if a person has been sad for a long time or is having trouble carrying out day-to-day activities, that person may have clinical depression. In fact, up to 1 in 4 people with cancer have clinical depression.
Clinical depression causes great distress, impairs functioning, and might even make the person with cancer less able to follow their cancer treatment plan. The good news is that clinical depression can be treated.
If someone you know has symptoms of clinical depression, encourage them to get help. There are many ways to treat clinical depression including medicines, counseling, or a combination of both. Treatments can reduce suffering and improve quality of life.

Symptoms of clinical depression

  • Ongoing sad, hopeless, or “empty” mood for most of the day
  • Loss of interest or pleasure in almost all activities most of the time
  • Major weight loss (when not dieting) or weight gain
  • Being slowed down or restless and agitated almost every day, enough for others to notice
  • Extreme tiredness (fatigue) or loss of energy
  • Trouble sleeping with early waking, sleeping too much, or not being able to sleep
  • Trouble focusing thoughts, remembering, or making decisions
  • Feeling guilty, worthless, or helpless
  • Frequent thoughts of death or suicide (not just fear of death), suicide plans or attempts
Remember, some of these symptoms, such as weight changes, fatigue, or even forgetfulness can be caused by cancer and its treatment. But if 5 or more of these symptoms happen nearly every day for 2 weeks or more, or are severe enough to interfere with normal activities, it might be depression. If this is the case, encourage the person to be checked for clinical depression by a qualified health or mental health professional. If the person tries to hurt him- or herself, or has a plan to do so, get help right away.

What to do

  • Encourage the depressed person to continue treatment until symptoms improve, or to talk to the doctor about different treatment if there’s no improvement after 2 or 3 weeks.
  • Promote physical activity, especially mild exercise such as daily walks.
  • Help make appointments for mental health treatment, if needed.
  • Provide transportation for treatment, if needed.
  • Engage the person in conversation and activities they enjoy.
  • Remember that it’s OK to feel sad and grieve over the losses that cancer has brought to their lives, and to yours.
  • Realize that being pessimistic and thinking everything is hopeless are symptoms of depression and should get better with treatment.
  • Reassure the person that with time and treatment, he or she will start to feel better – and although changes to the treatment plan are sometimes needed, it’s important to be patient.
If you suspect you may be depressed, see a doctor. Make time to get the help and support you need.

Do not

  • Keep feelings inside.
  • Force someone to talk when they are not ready.
  • Blame yourself or another person for feeling depressed
  • Tell a person to cheer up if they seem depressed.
  • Try to reason with a person whose depression appears severe. Instead, talk with the doctor about medicines and other kinds of help.





http://www.cancer.org/treatment/treatmentsandsideeffects/emotionalsideeffects/anxietyfearanddepression/anxiety-fear-and-depression-depression

Friday, April 24, 2015

Additional Testing

ADDITIONAL TESTING....


Some people were asking me what kind of testing my Oncologist is doing before we consider what treatment plan we will follow. Below is the test and can be ran through the biopsy I had a month ago. This will determine if there are any abnormalities that may cause the cancer to come back or to metastasize. If all goes well we should be underway with the treatment or treatments in about a month. Looking forward to being Cancer free by the end of the year. I may be expecting too much, but it is a goal I want to achieve.

Mark


OncoGeneDx Custom PanelFORMS AND DOCUMENTS

TEST DETAILS

Genes:
APC, ATM, AXIN2, BARD1, BMPR1A, BRCA1, BRCA2, BRIP1, CDH1, CDK4, CHEK2, EPCAM, FANCC, MLH1, MSH2, MSH6, MUTYH, NBN, PALB2, PMS2, PTEN, RAD51C, RAD51D, SMAD4, STK11, TP53, VHL, XRCC2
Disorders:
Lab Method:
Exon Array CGH|

http://www.genedx.com/test-catalog/available-tests/oncogenedx-custom-panel/ 

Wednesday, April 22, 2015

Kids with Cancer

PBS special about children with Cancer and how music gets them through their battles.  I watch these children,  with their enthusiasm and all I can do is smile and know that my battle is small.  These children have fought for years and are still fighting and singing. .. My heart goes or to all of them♡♡♡

Tuesday, April 21, 2015

OLD WOUNDS COME TO LIGHT

Old Wounds Come To Light


I went to the Oncologist the other day but before I did, I had an X-Ray done on my Right leg. The Doctor who took the test on Wednesday saw soft tissue and had asked me if I had Blood Clots in the past. I said not that I know of. When I was in seeing my Urologist, Dr. Modlin, he said we are doing some film on that leg to make sure all was good. I was worried about that and I didn't mention it, because had it turned into something I don't know how I would have dealt with it. I got a call from Doctor this afternoon and he said he could see where I had broken my leg. I told him I was hit by a School Bus in 1974, while walking to school in a blizzard. He said, LOL and I quote, "You did What? I said  yes I was hit by a school bus and in the hospital for two months. He said if you can get through that you can get through anything. He may be right. It was determination of young man to learn to walk again, and dance in Three Dance Marathons totaling 124 hours. One for our High School General Mclane  the class of 1978, For Muscular Dystrophy and WJET Radio back home and Mercyhurst College for The Special Olympics. I don't let anything keep me down for long and i will be damned if this does either. There are people who think that because I am not working now, that I am less a person. Let me be the first that their judgement shows just how wrong they are. They are the less of a person. 

Looking forward to the results of DX Genetic testing and I was glad that he offered it as a option for me.But this, like everything else will come to pass. And when it does. I am going dancing, laughing, and I already am singing. So take that Cancer. It takes more than bad cells to hold me down. And to HAZEL, Screw off. <3


The guy you see to the left has many faces and many loves. I am surely to go on in this life and make impressions to help others, guide those who need guidance, and to be loved by the ones that love him. I can't do that if I let a disease like Cancer take me out.
I am going to win this battle and I WILL SURVIVE!!!